Category Archives: Lack of research

Communication, or Lack of Communication?

Communication, or Lack of Communication? Communication is recognised as an essential human need and, therefore, as a basic human right. Without it, no individual or community can exist, or prosper. We all communicate every day, for the majority of us … Continue reading

Posted in Benefits, Communication, Conversation, Depression, Disablement, Discrimination, Fatigue, Hope, Judgement, Lack of research, Living, Mental Health, Mental Health First Aid, mental illness, Prejudice, Stigma, Talking, Uncategorized | Tagged , , , , | Leave a comment

Arachnoid Cyst Awareness Wheel n Walk UK 2011 – Outcome

The Arachnoid Cyst Awareness Wheel n Walk 2011 UK, held in Olney, Buckinghamshire, was a fantastic day, which had not only a marvellous atmosphere, but also a genuine feeling of camaraderie. We laughed and sometimes cried together, as new and … Continue reading

Posted in Arachnoid Cysts, Depression, Disablement, Discrimination, Epilepsy, Fatigue, Fun things to do, Hope, Lack of research, Living, Mental Health, mental health poetry, Patient poetry, Poetry, Prejudice, Stigma, Sunny Afternoon, Talking, Uncategorized, Walk n Wheel, Walking | Tagged , , , , , , , , , , | 1 Comment

Arachnoid Cyst Walk n Wheel UK 2011

Saturday 16th April is a very special day to all of us in the United Kingdom who have an Arachnoid Cyst; it is also a very special day to all of our friends and families.  Why is it so special?  … Continue reading

Posted in Arachnoid Cysts, Depression, Disablement, Epilepsy, Fatigue, Fun things to do, Lack of research, Living, Mental Health, Sunny Afternoon, Uncategorized, Walk n Wheel, Walking | Tagged , , , , , , , , , , | 1 Comment

They may be rare, but they still hurt.

The extract shown below is the comment I wrote on the Arachnoid Cyst Awareness Petition to the World Health Organisation asking for Arachnoid Cysts to be recognised as a genuine and serious painful medical condition, which can, and often does, … Continue reading

Posted in Arachnoid Cysts, Depression, Disablement, Epilepsy, Fatigue, Hope, Lack of research, Living, Mental Health, MRI Scans the lighter side, Stigma, Uncategorized, Walking | Tagged , , , , | 5 Comments