Arachnoid Cyst Awareness Wheel n Walk UK 2011 – Outcome

The Arachnoid Cyst Awareness Wheel n Walk 2011 UK, held in Olney, Buckinghamshire, was a fantastic day, which had not only a marvellous atmosphere, but also a genuine feeling of camaraderie. We laughed and sometimes cried together, as new and enduring friendships were made. On top of all that we raised money, through sponsorships, which will be used to help those who have Arachnoid Cysts and the many associated symptoms, illnesses and conditions that go with them. Thank you Dia for arranging such a wonderful day.

A couple of years ago I wrote a poem called ‘I’m Fine’, it was about Clinical Depression. Before, during and after our walk on the 16th April, through talking with fellow walkers, I realised that ‘I’m Fine’ described what is felt by those of us with an Arachnoid Cyst, as well as Clinical Depression. So I wrote another verse and revised the poem so that the focus is now on Arachnoid Cysts. OK, I know that it is not a happy poem, but I hope you like it.

‘I’m Fine’ or ‘As Others See Us’

Hello Chris you’re looking well, I thought you were ill!

Look into my eyes; see the countless private tears they have wept

See the overwhelming weariness, which makes my body ache

See the sleepless nights too many to remember

See the turmoil and pain which is my mind


Feel too proud to show the hurt; too proud to stop and rest

Feel ashamed that what you once, could! You can no longer do!

Feel the fear of letting others down

Feel the want; the desperate need to be believed


Feel the moods so dark, so powerful they have substance

Feel the weight of thoughts so heavy they cannot move

Feel the blameless guilt and shame so undeniable

I want to shout SORRY For what I don’t know


All of these hidden behind a thin veneer

A veneer of false happiness and well-being

These and so much more

Just the tip of the iceberg that is the Arachnoid Cyst


Should I say? No, I’d better not.

Thank you, yes, I’m fine, how are you?

Chris Rugg

April 2011

Advertisements

About wurzelmeone

I'm a mental health advocate, sometime writer, dreamer and according to some friends a part-time alchemist!
This entry was posted in Arachnoid Cysts, Depression, Disablement, Discrimination, Epilepsy, Fatigue, Fun things to do, Hope, Lack of research, Living, Mental Health, mental health poetry, Patient poetry, Poetry, Prejudice, Stigma, Sunny Afternoon, Talking, Uncategorized, Walk n Wheel, Walking and tagged , , , , , , , , , , . Bookmark the permalink.

One Response to Arachnoid Cyst Awareness Wheel n Walk UK 2011 – Outcome

  1. Dia says:

    Great blog entry Chris!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s